When Emersyn was born in June of 2024, her family was overjoyed to welcome her home to meet her older brother, Bentley. But just five days later, their lives changed unexpectedly.
Emersyn was admitted to the Pediatric Intensive Care Unit (PICU) at St. John’s Hospital in Springfield before later being transferred to the Neonatal Intensive Care Unit (NICU). What followed was more than a month of hospital stays, daily visits with specialists, countless tests, evaluations, and many unanswered questions for her family.
During her time in the NICU, Emersyn received several diagnoses that qualified her for Early Intervention services. Hospital staff immediately began the referral process, knowing how critical early support would be for her development and future success.
Today, nearly two years later, Emersyn is thriving.
Thanks to the dedication of her family, medical providers, therapists, and support team, she is now receiving the therapies and services she needs to continue reaching important milestones. Every victory — no matter how small — is celebrated by the people who surround her with love and encouragement.
Because of her disabilities, Emersyn requires constant advocacy and specialized support. Her mother, Taylor, works tirelessly alongside doctors, therapists, and CAPCIL Head Start Family Educator Sarah Behrends to ensure Emersyn has every opportunity to succeed. The family is also currently pursuing in-home nursing support, which would allow Taylor the ability to return to full-time employment while ensuring Emersyn continues to receive the care she needs.
Emersyn faces unique challenges. She has severe to profound hearing loss in both ears and is currently taking steps toward receiving cochlear implants. She also has a vision impairment known as Cortical Vision Impairment (CVI), a condition where the brain has difficulty processing visual information even though the eyes themselves may function normally. Children with both hearing and vision impairments are incredibly rare, affecting less than 2% of the global population with dual sensory loss.
Despite these challenges, Emersyn continues to show incredible resilience.
Recently, Sarah and Taylor worked together to apply for Braille books through the Dolly Parton Imagination Library, made possible locally through CAPCIL’s valued partnership with United Way. Shortly after being approved, Emersyn proudly received her very first book — creating another meaningful milestone in her journey.
Partnerships like these help ensure every child has access to learning opportunities, regardless of their abilities or circumstances. Through collaborations with organizations like United Way and programs like the Dolly Parton Imagination Library, CAPCIL Head Start is able to connect families to critical resources that promote literacy, inclusion, and lifelong learning.
At CAPCIL Head Start, we believe every child deserves the chance to grow, learn, and thrive. Emersyn’s story is a powerful reminder that disabilities do not define a child’s potential. With early intervention, compassionate support, community partnerships, and strong advocacy, children like Emersyn can overcome incredible obstacles.
Most importantly, her story reminds us that no family should have to navigate these challenges alone.
It truly takes a village.
Story submitted by CAPCIL Family Educator Sarah Behrends.


